August 19th, 2011

Yesterday, Noelle, Dw and I attended the JDRF Wild for a Cure kick-off luncheon. Not only did we all get to enjoy a delicious (fancy-as Noelle put it) lunch, but we also got motivated and encouraged about our fight to find a cure for diabetes. Linda Mays, from ABC 33/40, was the emcee of the event and she was delightful. Her mother has Type 2 Diabetes so she knows a bit about the parents of children with T1D and adults that were in attendance face every day with T1D.  One of our local D-moms (mom of a child with diabetes) spoke about their journey with T1D. She told a very disturbing story about an 8 year old child that they knew that died from undiagnosed Type 1 Diabetes. 14 months later, this D-mom was able to recognize the signs and symptoms in her own 2 1/2 year old daughter after hearing about this other family’s sad story and was able to get her daughter to medical care before she went into DKA (Diabetic Ketoacidosis). She was so thankful that she recognized the symptoms and her daughters life was spared. Once again, it made me realize how important it is that we get the word out to our friends and family about what to watch for…prayerfully, they will never need to recall those symptoms but if they do, a life could be spared.

These may occur suddenly.
• Extreme thirst
• Frequent urination
• Sudden vision changes
• Sugar in urine
• Fruity, sweet or wine-like smell on breath
• Increased appetite
• Sudden weight loss
• Drowsiness or lethargy
• Heavy or labored breathing
• Stupor or unconsciousness
Source: Juvenile Diabetes Research Foundation International

Now for the inspiring part of the day…the Artificial Pancreas is soooooo close to becoming a reality for my girl and everyone else with T1D!!!  Every time I hear this, I get so excited!  It is NOT a cure by any means but it does mean that my daughter will have much better control of her blood sugar which means that her kidneys, eyes, limbs and heart will be safer. It also means that she won’t have to figure out every single carbohydrate that goes into her mouth!!  She will still have to check her blood sugar but hopefully not as many times per day.  Also, I was so encouraged when I heard, once again, about the people that have tested the Artificial Pancreas and how for once, they consistent blood sugars all night.  WOW!  Does this mean we would all get a full nights sleep?!?!  No more fear of seizures or finding our child passed out from dropping too low in the night.

The cure is on the horizon, too!!  This is so exciting!!  Until that day…we will keep on believing and praying for a cure!

After the luncheon we visited with Linda Mays.  She was so sweet!  Thank you for allowing us to be a bit star struck and get a photo of Noelle with you

I wonder…

August 10th, 2011

I just spent a few minutes sitting on Noelle’s bed, holding her while she cried and said these painful words. “I wonder what life would be like without diabetes. I can’t ever remember not having it. All I can remember is the time in the hospital [October 2, 2008].” It broke my heart. The words of encouragement seem so empty in times like this. I don’t know what it is like to have a device strapped to my body 24 hours a day/7 days a week. I can’t relate to what my 9 year old goes through every day or how she feels. I did remind her that even though she has this disease, it doesn’t stop her from doing anything she wants or being anything she wants to be. I reminded her of our dear friend, Alexandra, who finished her senior year of high school this past May with high honors, was captain of her cheerleading squad, won beauty pageants and seems to do anything she sets her mind to…and do it well…in spite of having Type 1 Diabetes since she was 8 years old! She just started her freshman year of college…with amazing scholarships. Although I know she has to put more thought into everything she does, wears an insulin pump on her body, has to calculate every ounce of food that enters her body…she does it all with grace and dignity and most of all…it doesn’t slow her down! She is an amazing role model for Noelle and we are so thankful that God placed her and her family in our life when Noelle was diagnosed. All this said, I did give Noelle a word of Scripture that carries her (and me) through. “I can do ALL things through CHRIST who strengthens me.” Philippians 4:13 Thankfully, no matter where we are or what we are going through, our Heavenly Father is cheering us on and walking through it all…good or bad…with us!! That gives us both encouragement!

Be THE Dollar that Funds the Cure!!

August 2nd, 2011

Hello friends and family!

October 2, 2008, our 6 year old daughter’s life was forever changed…and so was our family.  Noelle was constantly thirsty, going to the bathroom frequently, always hungry but losing weight, lethargic, and nauseated, all classic symptoms of Type 1 Diabetes. She spent 3 days in the hospital where Dwight and I learned how to keep our daughter alive.  It was overwhelming and terrifying.  It is hard to believe that was almost 3 years ago.  Noelle is the bravest child that I know!

  • She endures 10-12 finger pricks a day to check her blood sugar.
  • She is hooked up to her “life support system” (her insulin pump) 24/7.
  • She has to check her blood sugar, count carbs and take insulin for every bite of food she eats.
  • She never gets a break or vacation from diabetes.  It goes with her everywhere.
  • Through it all, she rarely complains.
  • For her, this is her life.
    On September 24th, we will be walking again in the JDRF Walk to Cure Diabetes to support our daughter, Noelle, and the cure for Juvenile (Type 1) diabetes. Last year, we raised about $4300.00 and we would like to thank everyone again for your generous support of JDRF and Noelle.  This year, we hope to raise $5000!!!

    Your donation supports not only the research for the cure, but also funds many clinical trials currently exploring innovative technologies for better management of Type 1 diabetes. Your money is providing funding for the development of the artificial pancreas. This will be a device much like an insulin pump but will continually monitor her blood sugar levels and inject insulin without human intervention. In other words, this would mean no more finger pricks and insulin shots and most importantly, it will keep her blood sugar in a healthy range without the complications of blood sugar highs and lows. That is just one of the promising technologies being developed but our hope is for the CURE…we are getting closer!!  Thanks for your help!

    We would love for you to come walk with us on Saturday, September 24th at Veterans Park in Hoover, AL. Even if you aren’t able to attend the walk, any donation amount to Noelle’s team is appreciated. Your generous support gets us one step and one dollar closer to the cure. No matter the amount of your donation, your dollar may be THE dollar that funds the CURE!! No donation amount is too small.

    So please donate to JDRF this year and consider making JDRF part of your annual charitable contributions. Thank you for your support and hope to see you at the Walk!  You can follow this link to either join our team or give any amount to help us Fund the CURE!

    Continue to lift Noelle up in your prayers.  We know that God is bigger than any disease and that He has a plan for her through all of this.

    Thank you for your prayers and support!!!

    Much Love,
    Dwight & Krista


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